Short Story

Jorge was born on April 5, 2010. He arrived quickly and smoothly, at 38 weeks and 3 days. He was a beautiful baby with emerald eyes and very, very calm. But something told me that this quiet was not normal. Finally, the pediatrician announced muscular hypotony and the need to be examined by a neurologist. From that moment on, there was a whole traffic of medical consultations, hospitals, specialists and early attention, full of diagnostic tests. We still do not have an accurate diagnosis. The Clinic does not agree with any metabolic disease or with a clear cause. The lesion observed in his brain, leukomalacia type – more frequent in premature babies – does not justify that Jorge does not walk, nor is he able to sit alone, nor articulate correctly, nor barely speak. In short, nothing is known for sure. What we do know is that Jorge advances with work and effort and with the therapies and professionals, which we are lucky enough to have found on this long road. Little by little he is gaining strength, manipulative skills and speech abilities. He can now pronounce words more and more clearly.
We have a life to go as far as Jorge wants to go, with enthusiasm, motivation and a lot of effort. When we discovered the bionic exoskeleton just two years ago, we immediately understood that it was the solution to get Jorge out of his immobility. Getting him up and walking is the best therapy to have a better quality of life and advance in his cognitive and physical development. We feel lucky that Jorge, being part of this clinical trial, was able to prove it. Jorge’s three sessions with his exoskeleton have confirmed what we expected and have exceeded all our expectations. It is a playful and motivating therapy for Jorge, who smiles happily and puts all his efforts into taking his steps. It is touching to see him and feel that he is aware of the change that the exoskeleton represents, his new vertical position and his new look at the world: the one that is common to the rest of the children but that he experiences now, at the age of nine, for the first time. Jorge is happy, you can’t ask for more… his face says it all! The first session with his sister was exciting: for the first time we saw the two brothers standing, playing together. The emotion of seeing them like that is indescribable. So happy!
For all this we need continuous treatments with the exoskeleton, which gives us hope that Jorge will evolve. We want to spread this experience and take the necessary steps so that this technology reaches many children and families. Without a doubt, accessing this therapy will constitute a great change in their lives as it is already constituting ours.
We need diffusion and financing to make this dream come true and continue walking together. Will you help us?

Crowdfunding Jorge 9 years / Cerebral Palsy

by SALCEDO AVILES PAOLA

  • 31.770,00

    Funding Goal
  • 6.442,00

    Funds Raised
  • Campaign Never Ends

    Campaign End Method
Raised Percent :
20.28%
Minimum amount is €1 Maximum amount is €

SALCEDO AVILES PAOLA

2 Campaigns | 0 Loved campaigns

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Nickname Donate Amount Date
Anonymous 10,00 July 20, 2020
Erica Ileana 10,00 May 30, 2020
Cámara de Comercio Alemana para España 1.000,00 May 25, 2020
Manu 25,00 May 07, 2020
Ruy & familia 250,00 May 03, 2020
Anonimo 25,00 April 27, 2020
Berto 20,00 April 26, 2020
Carmen 200,00 April 17, 2020
Kirrukiti 30,00 April 08, 2020
AITANA CABRERA 50,00 April 05, 2020
Lo vamos a conseguir 22,00 April 01, 2020
GORKA ZU. 20,00 March 31, 2020
Manu 50,00 March 30, 2020
Carlos giner 100,00 March 29, 2020
Andrei 50,00 March 29, 2020
Unax 100,00 March 28, 2020
Kikestopi 10,00 March 26, 2020
Anonymous 250,00 March 26, 2020
Anonymous 150,00 March 26, 2020
Beatriz 50,00 March 23, 2020
Anonymous 10,00 March 23, 2020
Anonymous 20,00 March 23, 2020
Paula y Jaime 50,00 March 23, 2020
Anonymous 20,00 March 22, 2020
Anonymous 10,00 March 22, 2020
Ana 100,00 March 21, 2020
Anonymous 20,00 March 18, 2020
Anonymous 20,00 March 18, 2020
Anonymous 10,00 March 18, 2020
Alberto Moyano 50,00 March 18, 2020
Mara 50,00 March 17, 2020
V J 50,00 March 17, 2020
Laura y Berta 100,00 March 16, 2020
Sonia y Jesús 200,00 March 16, 2020
Gronkete 10,00 March 16, 2020
Coverdale 100,00 March 15, 2020
ALMUDENA 100,00 March 15, 2020
Irene Aranda 10,00 March 15, 2020
Guille y sus padres 250,00 March 14, 2020
Lourdes 30,00 March 14, 2020
Jorge y Sergio 100,00 March 14, 2020
Anonymous 400,00 March 13, 2020
Anonymous 20,00 March 13, 2020
Anonymous 100,00 March 13, 2020
Tritur 100,00 March 13, 2020
Anonymous 50,00 March 13, 2020
Anonymous 100,00 March 13, 2020
Anonymous 20,00 March 13, 2020
Anonymous 10,00 March 13, 2020
Ana Fernandez 10,00 March 13, 2020
Jaime y Alejandro 10,00 March 12, 2020
Anonymous 10,00 March 12, 2020
Puri 100,00 March 12, 2020
Conchita y Cleto 100,00 March 12, 2020
Anonymous 10,00 March 12, 2020
Crisgoneban 20,00 March 12, 2020
Silvia Flores 100,00 March 12, 2020
Tono 20,00 March 12, 2020
Mar 10,00 March 12, 2020
Maria 10,00 March 12, 2020
sara lopez-camacho herraez 10,00 March 12, 2020
Ángel Almodóvar Tejero 10,00 March 12, 2020
JULIA 100,00 March 12, 2020
Carolina 50,00 March 12, 2020
Nuria 10,00 March 12, 2020
Álvaro y Raquel 50,00 March 12, 2020
Stampa 20,00 March 12, 2020
Erika 10,00 March 12, 2020
Anonymous 50,00 March 12, 2020
Rafa 50,00 March 11, 2020
JULIAN Y CAROL 100,00 March 11, 2020
Begoña 100,00 March 11, 2020
Begoña 10,00 March 11, 2020
Sagrario y Juan Manuel 50,00 March 11, 2020
Carín 10,00 March 11, 2020
Gonzalo 10,00 March 11, 2020
Anonymous 10,00 March 11, 2020
Maribel 100,00 March 11, 2020
Fer y Lola 50,00 March 11, 2020
Nacho-Corazonistas 40,00 March 11, 2020
Adri tu hermana 10,00 March 11, 2020
Pablo callen 100,00 March 11, 2020
Anonymous 10,00 March 11, 2020
Anonymous 30,00 March 11, 2020
Chato 10,00 March 11, 2020
Grupo Garden World 10,00 March 11, 2020
Javier y Carmen 100,00 March 11, 2020
Alberto Moñino 100,00 March 11, 2020
Anonymous 20,00 March 11, 2020
Tino Lopez 30,00 March 11, 2020
MARTA 40,00 March 11, 2020
Anonymous 10,00 March 11, 2020
Camino Aguerri 10,00 March 11, 2020
Laura 100,00 March 11, 2020
Fernando Huerta 50,00 March 11, 2020
Leticia 40,00 March 11, 2020