Short Story

Alvaro is 8 years old. When he was born he was so blond that his eyelashes and eyebrows were transparent. For us he was beautiful, perfect. One day, when he was six months old, we noticed that his movements were beginning to be more clumsy. We went to different pediatricians and they all said that our son was “lazy” and that’s why he couldn’t crawl, he could hardly eat and that’s why his hands were shaking. It took us six months to find a pediatrician who recognized these hand tremors as neurological damage as soon as she saw the child, and sent us to the hospital. The genetic diagnosis confirmed that he had SMA, and the words with which they described this disease were “degenerative and incurable disease”. These are words that I hope no parent will ever have to hear. We did not give up, we looked for therapies and specialists who would bet on our son. With a lot of daily physiotherapy, doctors who fought for him and thanks above all to the great inner strength that Álvaro has, we overcame the two years that gave him life, and when he was almost three years old, we got to know Marsi Bionics and CSIC’s project: The Pediatric Exoskeleton. A futuristic invention that achieved what absolutely all the specialists in SMA worldwide assured that a child like Álvaro would never do: walk. The use of this wonderful invention could mean for Álvaro and other children like him to live more years with a higher quality of life.

Crowdfunding Alvaro 8 years / Spinal Muscular Atrophy

by SALCEDO AVILES PAOLA

  • 31.770,00

    Funding Goal
  • 25.173,00

    Funds Raised
  • 0 Days to go
  • Target Date

    Campaign End Method
Raised Percent :
79.24%
The campaign is successful.

SALCEDO AVILES PAOLA

6 Campaigns | 0 Loved campaigns

See full bio

Campaign Story

Porcentaje de la financiación que ya se ha consumido en las sesiones de terapia:

100%
Nickname Donate Amount Date
Airbus 30,00 December 13, 2021
Zaf 60,00 December 13, 2021
AIRBUS 30,00 December 09, 2021
AnaAltea 10,00 December 07, 2021
AIRBUS 80,00 December 07, 2021
AIRBUS 60,00 December 03, 2021
AIRBUS 15,00 December 03, 2021
AIRBUS 30,00 December 03, 2021
Airbus 30,00 December 02, 2021
SebSob 15,00 December 02, 2021
Airbus 90,00 December 02, 2021
Anonymous 40,00 December 02, 2021
AIRBUS 20,00 December 02, 2021
AIRBUS 15,00 December 02, 2021
Airbus 15,00 December 02, 2021
AIRBUS 50,00 December 02, 2021
María RH 18,00 December 02, 2021
AIRBUS 25,00 December 02, 2021
AIRBUS 100,00 December 02, 2021
AIRBUS 25,00 December 02, 2021
Anonymous 40,00 December 02, 2021
Airbus 50,00 December 02, 2021
Anonymous 15,00 December 02, 2021
AIRBUS 35,00 December 02, 2021
AIRBUS 15,00 December 02, 2021
Anonymous 30,00 December 02, 2021
AIRBUS 40,00 December 02, 2021
AIRBUS 20,00 December 02, 2021
Airbus 15,00 December 02, 2021
AIRBUS 20,00 December 02, 2021
AIRBUS 60,00 December 02, 2021
AIRBUS 15,00 December 02, 2021
Anonymous 15,00 December 02, 2021
Elena 30,00 December 02, 2021
Anonymous 45,00 December 02, 2021
Anonymous 60,00 December 01, 2021
AIRBUS 15,00 December 01, 2021
AIRBUS 15,00 December 01, 2021
AIRBUS 30,00 December 01, 2021
AIRBUS 15,00 December 01, 2021
Airbus 15,00 December 01, 2021
AIRBUS 30,00 December 01, 2021
Airbus 40,00 December 01, 2021
Airbus 50,00 December 01, 2021
Anonymous 30,00 December 01, 2021
AIRBUS 45,00 December 01, 2021
Javi 45,00 December 01, 2021
AIRBUS 15,00 December 01, 2021
AIRBUS 15,00 December 01, 2021
AIRBUS 50,00 December 01, 2021
AIRBUS 20,00 December 01, 2021
Anonymous 15,00 December 01, 2021
AIRBUS 45,00 December 01, 2021
Airbus 15,00 December 01, 2021
Alfonso Pérez arribas 45,00 December 01, 2021
AIRBUS 20,00 November 30, 2021
AIRBUS 25,00 November 30, 2021
AIRBUS 15,00 November 30, 2021
Airbus 15,00 November 30, 2021
Airbus 15,00 November 30, 2021
AIRBUS 40,00 November 30, 2021
AIRBUS 90,00 November 30, 2021
Anonymous 15,00 November 30, 2021
Airbus 20,00 November 30, 2021
AIRBUS 16,00 November 30, 2021
Anonymous 45,00 November 30, 2021
AIRBUS 15,00 November 30, 2021
Anonymous 30,00 November 30, 2021
AIRBUS 15,00 November 30, 2021
AIRBUS 15,00 November 30, 2021
AIRBUS 15,00 November 30, 2021
AIRBUS 75,00 November 30, 2021
AIRBUS 35,00 November 30, 2021
Airbus 30,00 November 30, 2021
Pini 25,00 November 30, 2021
Toposandia 40,00 November 30, 2021
AIRBUS 60,00 November 30, 2021
Airbus 80,00 November 30, 2021
AIRBUS 30,00 November 30, 2021
Lidia E. 5,00 November 30, 2021
AIRBUS 150,00 November 30, 2021
Anonymous 30,00 November 30, 2021
Airbus 50,00 November 30, 2021
AIRBUS 15,00 November 30, 2021
Airbus 40,00 November 30, 2021
Rodrigo Yáñez 15,00 November 30, 2021
Airbus 120,00 November 30, 2021
AIRBUS 60,00 November 30, 2021
Airbus 15,00 November 30, 2021
Airbus 40,00 November 30, 2021
AIRBUS 15,00 November 30, 2021
AIRBUS 50,00 November 30, 2021
Isabel Simón Guerrero 100,00 November 30, 2021
AIRBUS 140,00 November 30, 2021
AIRBUS 30,00 November 30, 2021
MJ 30,00 November 30, 2021
AIRBUS 15,00 November 30, 2021
AIRBUS 60,00 November 30, 2021
Anonymous 15,00 November 30, 2021
Airbus 15,00 November 30, 2021
Lidia E. 15,00 November 30, 2021
AIRBUS 30,00 November 30, 2021
AIRBUS 45,00 November 30, 2021
AIRBUS 75,00 November 29, 2021
Airbus 30,00 November 29, 2021
AIRBUS 60,00 November 29, 2021
Airbus 15,00 November 29, 2021
AIRBUS 40,00 November 29, 2021
Airbus 20,00 November 29, 2021
AIRBUS 45,00 November 29, 2021
Anonymous 60,00 November 29, 2021
Jaime Corrochano 75,00 November 29, 2021
Anonymous 75,00 November 29, 2021
Airbus 30,00 November 29, 2021
Anonymous 15,00 November 29, 2021
AIRBUS 30,00 November 29, 2021
AIRBUS 15,00 November 29, 2021
Eva 30,00 November 29, 2021
AIRBUS 100,00 November 29, 2021
AIRBUS 75,00 November 29, 2021
Airbus 20,00 November 29, 2021
AIRBUS 60,00 November 29, 2021
Airbus 15,00 November 29, 2021
AIRBUS 15,00 November 29, 2021
Anonymous 50,00 November 29, 2021
Mario 40,00 November 29, 2021
Airbus 60,00 November 29, 2021
Airbus 15,00 November 29, 2021
Anonymous 40,00 November 29, 2021
AIRBUS 210,00 November 29, 2021
Airbus 75,00 November 29, 2021
Anonymous 15,00 November 29, 2021
AIRBUS 30,00 November 29, 2021
AIRBUS 210,00 November 29, 2021
A.C. 60,00 November 29, 2021
AIRBUS 50,00 November 29, 2021
AIRBUS 60,00 November 29, 2021
Andrea 40,00 November 29, 2021
AIRBUS 30,00 November 29, 2021
AIRBUS 20,00 November 29, 2021
Anonymous 30,00 November 29, 2021
Fernando MO 40,00 November 29, 2021
Airbus 15,00 November 29, 2021
AIRBUS 20,00 November 29, 2021
Sergio 15,00 November 29, 2021
AIRBUS 15,00 November 29, 2021
Anonymous 30,00 November 29, 2021
AIRBUS 60,00 November 29, 2021
AIRBUS 40,00 November 29, 2021
AIRBUS 45,00 November 29, 2021
AIRBUS 10,00 November 29, 2021
Anonymous 20,00 November 29, 2021
AIRBUS 100,00 November 29, 2021
Anonymous 18,00 November 29, 2021
MartaG 45,00 November 29, 2021
Anonymous 75,00 November 29, 2021
AIRBUS 15,00 November 29, 2021
AIRBUS 20,00 November 29, 2021
Anonymous 45,00 November 29, 2021
AIRBUS 15,00 November 29, 2021
Airbus 30,00 November 29, 2021
AIRBUS 15,00 November 29, 2021
AIRBUS 90,00 November 29, 2021
Fran Longueira 10,00 November 24, 2021
Encarna Valero 93,00 November 22, 2021
Anonymous 8,00 November 22, 2021
Airbus 10,00 November 22, 2021
AIRBUS 15,00 November 19, 2021
Airbus 15,00 November 19, 2021
Maria García Quesada 30,00 October 26, 2021
Anonymous 150,00 October 22, 2021
Carmen Fernández 50,00 October 22, 2021
Antonio y Aurora 100,00 September 27, 2021
Anonymous 50,00 September 19, 2021
Miguel Sotillo y Ana Castañeda 20,00 September 15, 2021
Carolina MG 50,00 September 10, 2021
B.e.r.t.o 30,00 August 30, 2021
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Anonymous 20,00 August 30, 2021
Merce y Marta 10,00 August 29, 2021
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Singh 50,00 August 13, 2021
Anonymous 50,00 August 11, 2021
Anonymous 100,00 August 10, 2021
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vpuente 50,00 August 08, 2021
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SV 50,00 July 01, 2021
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morpe19 20,00 June 16, 2021
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Daizu kidayo 20,00 June 05, 2021
Elias B.C. 50,00 June 05, 2021
Anonymous 10,00 June 03, 2021
Anonymous 10,00 June 03, 2021
Anonymous 5,00 June 03, 2021
Anonymous 5,00 June 03, 2021
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SOMOS INDIOS, SOMOS FUERTES 20,00 June 03, 2021
Juanra 10,00 June 03, 2021
Jota M Sánchezz 5,00 June 03, 2021
Anonymous 10,00 June 03, 2021
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Anonymous 10,00 June 03, 2021
Ninox 10,00 June 03, 2021
Jose Gallego 10,00 June 03, 2021
fjfdepedro 10,00 June 03, 2021
RMG 5,00 June 03, 2021
Anonymous 50,00 June 03, 2021
Anonymous 5,00 June 02, 2021
Víctor 11,00 June 02, 2021
Anonymous 20,00 June 02, 2021
Apuko 10,00 May 28, 2021
Anonymous 50,00 May 26, 2021
BEA 100,00 May 25, 2021
Fdez de Carranza 100,00 May 25, 2021
Anonymous 30,00 May 24, 2021
SaruchiClau 10,00 May 24, 2021
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Anonymous 20,00 May 24, 2021
Anonymous 10,00 May 24, 2021
Anonymous 10,00 May 24, 2021
Jessica 30,00 May 24, 2021
Anonymous 50,00 May 24, 2021
Anonymous 300,00 May 24, 2021
Larryher 100,00 May 23, 2021
Bismillah 10,00 May 23, 2021
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Anonymous 100,00 May 23, 2021
Víctor Sanz 300,00 May 23, 2021
Anonymous 7,00 May 23, 2021
BTH 20,00 May 23, 2021
SIEMPRE ADELANTE 21,00 May 23, 2021
Teresa 50,00 May 23, 2021
Teresa Bj 6,00 May 23, 2021
Anonymous 15,00 May 23, 2021
Anonymous 10,00 May 23, 2021
Elías B.C. 50,00 May 23, 2021
Ondoamor 10,00 May 23, 2021
SEDRUOL78 50,00 May 23, 2021
Mara Redaelli 20,00 May 23, 2021
Calgravat 50,00 May 23, 2021
Anonymous 10,00 May 23, 2021
Anónima 20,00 May 23, 2021
Cuchuflete 20,00 May 23, 2021
Anonymous 50,00 May 23, 2021
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Asorey 50,00 May 22, 2021
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Mónica 10,00 May 20, 2021
Marta 80,00 May 19, 2021
Stefanitis 100,00 May 19, 2021
Anonymous 10,00 May 19, 2021
Jesús 50,00 May 19, 2021
Maria 20,00 May 18, 2021
Keko 10,00 May 18, 2021
Pepe y Elena 100,00 May 18, 2021
María SA 50,00 May 18, 2021
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Acaima 100,00 May 17, 2021
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EDU 50,00 May 16, 2021
Sara 200,00 May 15, 2021
Manuela 100,00 May 15, 2021
F Javier 10,00 May 15, 2021
Vanesa zarapuz 40,00 May 15, 2021
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Anonymous 10,00 May 14, 2021
Anonymous 10,00 May 14, 2021
Anonymous 10,00 May 14, 2021
Raquel 1.000,00 May 14, 2021
Yuri 1.000,00 May 14, 2021
Tus vecinos de Velarde 13 10,00 May 14, 2021
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Laura 100,00 May 14, 2021
Anonymous 50,00 May 14, 2021
Anonymous 10,00 May 14, 2021
PNJ 90,00 April 08, 2021
Pedro C. 20,00 March 19, 2021
Anonymous 25,00 March 03, 2021
Anonymous 10,00 February 21, 2021
Anonymous 10,00 February 20, 2021
Rocío P. 10,00 February 20, 2021
Anonymous 10,00 February 16, 2021
Pilarín 25,00 February 04, 2021
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angelsanta 20,00 January 24, 2021
WOLLOWITZ 30,00 January 24, 2021
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Matilde 1.000,00 January 24, 2021
Taboada 50,00 January 23, 2021
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Ana 10,00 January 18, 2021
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Mar Mata 15,00 January 17, 2021
Tabol 15,00 January 17, 2021
Anonymous 100,00 January 17, 2021
Sary 10,00 January 17, 2021
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Fortes Barreto 50,00 January 16, 2021
Marga 100,00 January 14, 2021
BARRACA LA FAM DE SELLA 34,00 January 11, 2021
Esther 20,00 January 10, 2021
Anonymous 20,00 January 10, 2021
Anonymous 10,00 January 10, 2021
Bernardino 250,00 January 10, 2021
Martin, Bruno y Oliver 20,00 January 09, 2021
Nuño 20,00 January 09, 2021
Anonymous 30,00 January 09, 2021
Anonymous 20,00 January 09, 2021
Desiderio 100,00 January 09, 2021
Melchor 20,00 January 06, 2021
Mariola 50,00 January 05, 2021
Carmen 20,00 January 04, 2021
MRN 10,00 January 04, 2021
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Manuel Del 10,00 January 04, 2021
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Sito 300,00 January 03, 2021
Domin 10,00 January 03, 2021
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Maria 10,00 January 03, 2021
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Ana 30,00 January 02, 2021
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Paula J 40,00 January 02, 2021
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Icr 10,00 January 02, 2021
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AIRBUS 60,00 December 01, 2020
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AIRBUS 50,00 December 01, 2020
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AIRBUS 120,00 December 01, 2020
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Airbus 50,00 December 01, 2020
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Anonymous 200,00 September 07, 2020
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Erica Ileana 10,00 May 30, 2020
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JOANA ZU. 20,00 March 31, 2020
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LAURA RIVAS 10,00 February 18, 2020
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Ana 100,00 December 31, 2019
Chus 10,00 December 31, 2019
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SCA 5,00 December 01, 2019
sak24 1,00 December 01, 2019