Short Story
Alvaro is 8 years old. When he was born he was so blond that his eyelashes and eyebrows were transparent. For us he was beautiful, perfect. One day, when he was six months old, we noticed that his movements were beginning to be more clumsy. We went to different pediatricians and they all said that our son was “lazy” and that’s why he couldn’t crawl, he could hardly eat and that’s why his hands were shaking. It took us six months to find a pediatrician who recognized these hand tremors as neurological damage as soon as she saw the child, and sent us to the hospital. The genetic diagnosis confirmed that he had SMA, and the words with which they described this disease were “degenerative and incurable disease”. These are words that I hope no parent will ever have to hear. We did not give up, we looked for therapies and specialists who would bet on our son. With a lot of daily physiotherapy, doctors who fought for him and thanks above all to the great inner strength that Álvaro has, we overcame the two years that gave him life, and when he was almost three years old, we got to know Marsi Bionics and CSIC’s project: The Pediatric Exoskeleton. A futuristic invention that achieved what absolutely all the specialists in SMA worldwide assured that a child like Álvaro would never do: walk. The use of this wonderful invention could mean for Álvaro and other children like him to live more years with a higher quality of life.
Crowdfunding Alvaro 8 years / Spinal Muscular Atrophy
31.770,00€
Funding Goal-
10.225,00€
Funds Raised -
Campaign Never Ends
Campaign End Method
Nickname | Donate Amount | Date |
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Anonymous | 10,00€ | January 23, 2021 |
Ana | 10,00€ | January 18, 2021 |
Anonymous | 50,00€ | January 17, 2021 |
Mar Mata | 15,00€ | January 17, 2021 |
Tabol | 15,00€ | January 17, 2021 |
Anonymous | 100,00€ | January 17, 2021 |
Sary | 10,00€ | January 17, 2021 |
Anonymous | 50,00€ | January 16, 2021 |
Susana | 50,00€ | January 16, 2021 |
Fortes Barreto | 50,00€ | January 16, 2021 |
Marga | 100,00€ | January 14, 2021 |
BARRACA LA FAM DE SELLA | 34,00€ | January 11, 2021 |
Esther | 20,00€ | January 10, 2021 |
Anonymous | 20,00€ | January 10, 2021 |
Anonymous | 10,00€ | January 10, 2021 |
Bernardino | 250,00€ | January 10, 2021 |
Martin, Bruno y Oliver | 20,00€ | January 09, 2021 |
Nuño | 20,00€ | January 09, 2021 |
Anonymous | 30,00€ | January 09, 2021 |
Anonymous | 20,00€ | January 09, 2021 |
Desiderio | 100,00€ | January 09, 2021 |
Melchor | 20,00€ | January 06, 2021 |
Mariola | 50,00€ | January 05, 2021 |
Carmen | 20,00€ | January 04, 2021 |
MRN | 10,00€ | January 04, 2021 |
Anonymous | 25,00€ | January 04, 2021 |
Laura Aguilar | 30,00€ | January 04, 2021 |
Manuel Del | 10,00€ | January 04, 2021 |
Anonymous | 10,00€ | January 04, 2021 |
Anonymous | 10,00€ | January 04, 2021 |
Beatriz | 100,00€ | January 04, 2021 |
Anonymous | 20,00€ | January 03, 2021 |
Sito | 300,00€ | January 03, 2021 |
Domin | 10,00€ | January 03, 2021 |
Anabel | 30,00€ | January 03, 2021 |
Gonzalo | 10,00€ | January 03, 2021 |
Maria | 10,00€ | January 03, 2021 |
Anonymous | 50,00€ | January 03, 2021 |
Jacob | 10,00€ | January 02, 2021 |
Toño | 100,00€ | January 02, 2021 |
Macarena Calderón | 100,00€ | January 02, 2021 |
Ana | 30,00€ | January 02, 2021 |
Anonymous | 10,00€ | January 02, 2021 |
Betis Gueno | 50,00€ | January 02, 2021 |
Anonymous | 100,00€ | January 02, 2021 |
Anonymous | 20,00€ | January 02, 2021 |
Anonymous | 25,00€ | January 02, 2021 |
Anonymous | 50,00€ | January 02, 2021 |
Anonymous | 2,00€ | January 02, 2021 |
Paula J | 40,00€ | January 02, 2021 |
Anonymous | 20,00€ | January 02, 2021 |
Icr | 10,00€ | January 02, 2021 |
LUIS | 10,00€ | January 02, 2021 |
Anonymous | 30,00€ | January 02, 2021 |
Erica Ileana | 20,00€ | January 02, 2021 |
Anonymous | 15,00€ | January 02, 2021 |
Anonymous | 10,00€ | January 02, 2021 |
Anonymous | 10,00€ | January 02, 2021 |
AntonioEs | 10,00€ | January 02, 2021 |
Bruno | 10,00€ | December 31, 2020 |
LauraD | 20,00€ | December 29, 2020 |
Eri | 10,00€ | December 29, 2020 |
Laura | 10,00€ | December 29, 2020 |
Anonymous | 10,00€ | December 29, 2020 |
Anonymous | 10,00€ | December 29, 2020 |
JaviCM | 10,00€ | December 28, 2020 |
Angels_o | 10,00€ | December 28, 2020 |
Javier Ruiz | 10,00€ | December 25, 2020 |
Anonymous | 30,00€ | December 22, 2020 |
Anonymous | 15,00€ | December 18, 2020 |
AIRBUS | 20,00€ | December 18, 2020 |
Airbus | 30,00€ | December 10, 2020 |
JM | 120,00€ | December 09, 2020 |
AIRBUS | 60,00€ | December 08, 2020 |
AIRBUS | 30,00€ | December 04, 2020 |
AIRBUS | 50,00€ | December 04, 2020 |
AIRBUS | 12,00€ | December 03, 2020 |
Airbus | 15,00€ | December 03, 2020 |
Airbus | 20,00€ | December 03, 2020 |
AIRBUS | 30,00€ | December 03, 2020 |
Carmela | 30,00€ | December 03, 2020 |
Daniela | 30,00€ | December 03, 2020 |
Anonymous | 25,00€ | December 03, 2020 |
AIRBUS | 45,00€ | December 03, 2020 |
Maria | 90,00€ | December 03, 2020 |
Anonymous | 30,00€ | December 02, 2020 |
AIRBUS | 20,00€ | December 02, 2020 |
Anonymous | 15,00€ | December 02, 2020 |
AIRBUS | 15,00€ | December 02, 2020 |
AIRBUS | 45,00€ | December 02, 2020 |
AIRBUS | 15,00€ | December 02, 2020 |
AIRBUS | 35,00€ | December 02, 2020 |
AIRBUS | 20,00€ | December 02, 2020 |
AIRBUS | 60,00€ | December 02, 2020 |
Airbus | 120,00€ | December 02, 2020 |
AIRBUS | 50,00€ | December 02, 2020 |
AIRBUS | 15,00€ | December 02, 2020 |
Pablof | 60,00€ | December 02, 2020 |
AIRBUS | 30,00€ | December 02, 2020 |
AIRBUS | 15,00€ | December 02, 2020 |
AIRBUS | 70,00€ | December 02, 2020 |
AIRBUS | 15,00€ | December 02, 2020 |
AIRBUS | 30,00€ | December 02, 2020 |
AIRBUS | 20,00€ | December 02, 2020 |
AIRBUS | 75,00€ | December 02, 2020 |
Airbus | 15,00€ | December 02, 2020 |
Airbus | 30,00€ | December 02, 2020 |
AIRBUS | 35,00€ | December 02, 2020 |
Anonymous | 35,00€ | December 02, 2020 |
AIRBUS | 40,00€ | December 02, 2020 |
Airbus | 60,00€ | December 01, 2020 |
AIRBUS | 35,00€ | December 01, 2020 |
AIRBUS | 45,00€ | December 01, 2020 |
AIRBUS | 60,00€ | December 01, 2020 |
AIRBUS | 50,00€ | December 01, 2020 |
AIRBUS | 80,00€ | December 01, 2020 |
AIRBUS | 60,00€ | December 01, 2020 |
AIRBUS54 | 34,00€ | December 01, 2020 |
Airbus | 58,00€ | December 01, 2020 |
AIRBUS | 95,00€ | December 01, 2020 |
AIRBUS | 205,00€ | December 01, 2020 |
Anonymous | 32,00€ | December 01, 2020 |
AIRBUS | 30,00€ | December 01, 2020 |
AIRBUS | 200,00€ | December 01, 2020 |
AIRBUS | 20,00€ | December 01, 2020 |
AIRBUS | 20,00€ | December 01, 2020 |
AIRBUS | 140,00€ | December 01, 2020 |
AIRBUS | 15,00€ | December 01, 2020 |
AIRBUS | 70,00€ | December 01, 2020 |
Airbus | 40,00€ | December 01, 2020 |
AIRBUS | 45,00€ | December 01, 2020 |
Airbus | 30,00€ | December 01, 2020 |
javivi99 | 15,00€ | December 01, 2020 |
EMEDEG | 15,00€ | December 01, 2020 |
Jorge | 40,00€ | December 01, 2020 |
JAP | 60,00€ | December 01, 2020 |
Anonymous | 50,00€ | December 01, 2020 |
AIRBUS | 100,00€ | December 01, 2020 |
Carlos Martinez | 15,00€ | December 01, 2020 |
AIRBUS | 60,00€ | December 01, 2020 |
AIRBUS | 30,00€ | December 01, 2020 |
AIRBUS | 20,00€ | December 01, 2020 |
AIRBUS Alberto Martín | 45,00€ | December 01, 2020 |
AIRBUS | 60,00€ | December 01, 2020 |
AIRBUS | 50,00€ | December 01, 2020 |
AIRBUS | 30,00€ | December 01, 2020 |
AIRBUS | 120,00€ | December 01, 2020 |
AIRBUS | 15,00€ | December 01, 2020 |
AIRBUS | 60,00€ | December 01, 2020 |
Airbus | 50,00€ | December 01, 2020 |
Carlos Martinez | 30,00€ | December 01, 2020 |
Juandi | 20,00€ | November 24, 2020 |
Anonymous | 25,00€ | November 03, 2020 |
JMM | 100,00€ | October 19, 2020 |
Anonymous | 25,00€ | October 03, 2020 |
Patricia | 100,00€ | September 16, 2020 |
Anonymous | 200,00€ | September 07, 2020 |
Anonymous | 25,00€ | September 03, 2020 |
Conchi | 100,00€ | August 23, 2020 |
viky | 50,00€ | August 09, 2020 |
Jorge T. | 30,00€ | August 04, 2020 |
Anonymous | 10,00€ | July 20, 2020 |
Anonymous | 25,00€ | July 04, 2020 |
Anonymous | 25,00€ | June 04, 2020 |
Erica Ileana | 10,00€ | May 30, 2020 |
Anonymous | 25,00€ | May 02, 2020 |
Anonymous | 50,00€ | May 01, 2020 |
Anonymous | 25,00€ | April 27, 2020 |
Berto | 20,00€ | April 26, 2020 |
Anonymous | 30,00€ | April 11, 2020 |
Anonymous | 100,00€ | April 10, 2020 |
Kirrukiti | 30,00€ | April 08, 2020 |
Hidrocea | 100,00€ | April 07, 2020 |
GEMMA | 100,00€ | April 06, 2020 |
Anonymous | 50,00€ | April 03, 2020 |
Anonymous | 25,00€ | April 02, 2020 |
Mamarama | 30,00€ | April 01, 2020 |
Mariana | 200,00€ | April 01, 2020 |
JOANA ZU. | 20,00€ | March 31, 2020 |
Anonymous | 10,00€ | March 30, 2020 |
Manu | 50,00€ | March 30, 2020 |
Leti | 15,00€ | March 29, 2020 |
Teresa | 20,00€ | March 27, 2020 |
Kikestopi | 25,00€ | March 26, 2020 |
JOSÉ ELORRIETA | 250,00€ | March 26, 2020 |
Anonymous | 10,00€ | March 26, 2020 |
Anonymous | 10,00€ | March 26, 2020 |
Anonymous | 10,00€ | March 23, 2020 |
Delfina | 15,00€ | March 23, 2020 |
Luis | 100,00€ | March 22, 2020 |
Amalia | 20,00€ | March 22, 2020 |
Jon.y.Ainara | 50,00€ | March 22, 2020 |
Anonymous | 25,00€ | March 03, 2020 |
Anonymous | 1.000,00€ | February 28, 2020 |
Anonymous | 1,00€ | February 20, 2020 |
LAURA RIVAS | 10,00€ | February 18, 2020 |
Pilarin | 25,00€ | February 01, 2020 |
ADG | 10,00€ | January 20, 2020 |
jrgordon | 10,00€ | January 20, 2020 |
ROB | 100,00€ | January 20, 2020 |
David | 100,00€ | January 18, 2020 |
Anonymous | 10,00€ | January 15, 2020 |
Anonymous | 1,00€ | January 13, 2020 |
Marie | 50,00€ | January 10, 2020 |
Pilarin | 200,00€ | January 06, 2020 |
Fran0809 | 10,00€ | January 03, 2020 |
Ánimo | 20,00€ | January 03, 2020 |
Ana | 100,00€ | December 31, 2019 |
Chus | 10,00€ | December 31, 2019 |
Eva | 10,00€ | December 29, 2019 |
Anonymous | 10,00€ | December 12, 2019 |
Anonymous | 50,00€ | December 12, 2019 |
EGA | 10,00€ | December 03, 2019 |
SCA | 5,00€ | December 01, 2019 |
sak24 | 1,00€ | December 01, 2019 |