Short Story

Alvaro is 8 years old. When he was born he was so blond that his eyelashes and eyebrows were transparent. For us he was beautiful, perfect. One day, when he was six months old, we noticed that his movements were beginning to be more clumsy. We went to different pediatricians and they all said that our son was “lazy” and that’s why he couldn’t crawl, he could hardly eat and that’s why his hands were shaking. It took us six months to find a pediatrician who recognized these hand tremors as neurological damage as soon as she saw the child, and sent us to the hospital. The genetic diagnosis confirmed that he had SMA, and the words with which they described this disease were “degenerative and incurable disease”. These are words that I hope no parent will ever have to hear. We did not give up, we looked for therapies and specialists who would bet on our son. With a lot of daily physiotherapy, doctors who fought for him and thanks above all to the great inner strength that Álvaro has, we overcame the two years that gave him life, and when he was almost three years old, we got to know Marsi Bionics and CSIC’s project: The Pediatric Exoskeleton. A futuristic invention that achieved what absolutely all the specialists in SMA worldwide assured that a child like Álvaro would never do: walk. The use of this wonderful invention could mean for Álvaro and other children like him to live more years with a higher quality of life.

Crowdfunding Alvaro 8 years / Spinal Muscular Atrophy

by SALCEDO AVILES PAOLA

  • 31.770,00

    Funding Goal
  • 3.258,00

    Funds Raised
  • Campaign Never Ends

    Campaign End Method
Raised Percent :
10.25%
Minimum amount is €1 Maximum amount is €

SALCEDO AVILES PAOLA

2 Campaigns | 0 Loved campaigns

See full bio

Nickname Donate Amount Date
Jorge T. 30,00 August 04, 2020
Anonymous 10,00 July 20, 2020
Anonymous 25,00 July 04, 2020
Anonymous 25,00 June 04, 2020
Erica Ileana 10,00 May 30, 2020
Anonymous 25,00 May 02, 2020
Anonymous 50,00 May 01, 2020
Anonymous 25,00 April 27, 2020
Berto 20,00 April 26, 2020
Anonymous 30,00 April 11, 2020
Anonymous 100,00 April 10, 2020
Kirrukiti 30,00 April 08, 2020
Hidrocea 100,00 April 07, 2020
GEMMA 100,00 April 06, 2020
Anonymous 50,00 April 03, 2020
Anonymous 25,00 April 02, 2020
Mamarama 30,00 April 01, 2020
Mariana 200,00 April 01, 2020
JOANA ZU. 20,00 March 31, 2020
Anonymous 10,00 March 30, 2020
Manu 50,00 March 30, 2020
Leti 15,00 March 29, 2020
Teresa 20,00 March 27, 2020
Kikestopi 25,00 March 26, 2020
JOSÉ ELORRIETA 250,00 March 26, 2020
Anonymous 10,00 March 26, 2020
Anonymous 10,00 March 26, 2020
Anonymous 10,00 March 23, 2020
Delfina 15,00 March 23, 2020
Luis 100,00 March 22, 2020
Amalia 20,00 March 22, 2020
Jon.y.Ainara 50,00 March 22, 2020
Anonymous 25,00 March 03, 2020
Anonymous 1.000,00 February 28, 2020
Anonymous 1,00 February 20, 2020
LAURA RIVAS 10,00 February 18, 2020
Pilarin 25,00 February 01, 2020
ADG 10,00 January 20, 2020
jrgordon 10,00 January 20, 2020
ROB 100,00 January 20, 2020
David 100,00 January 18, 2020
Anonymous 10,00 January 15, 2020
Anonymous 1,00 January 13, 2020
Marie 50,00 January 10, 2020
Pilarin 200,00 January 06, 2020
Fran0809 10,00 January 03, 2020
Ánimo 20,00 January 03, 2020
Ana 100,00 December 31, 2019
Chus 10,00 December 31, 2019
Eva 10,00 December 29, 2019
Anonymous 10,00 December 12, 2019
Anonymous 50,00 December 12, 2019
EGA 10,00 December 03, 2019
SCA 5,00 December 01, 2019
sak24 1,00 December 01, 2019